Cross Cultural Perspectives on Research Participation and Informed Consent  

Oleh:

Barata, Paula C. ; Gucciardi, Enza ; Ahmad, Farah ; Stewart, Donna E.

Jenis: Article from Journal - ilmiah internasional
Dalam koleksi: Social Science & Medicine (www.elsevier.com/locate/sosscimed) vol. 62 no. 2 (Jan. 2006), page 479-490.
Topik: CROSS CULTURAL STUDIES; canada; informed consent; research participation; portuguese; caribbean; immigrants

Ketersediaan

Perpustakaan Pusat (Semanggi) Nomor Panggil: SS53.1 Non-tandon: 1 (dapat dipinjam: 0) Tandon: tidak ada

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Isi artikel

This study examined portuguese canadian and carribean canadian immigrants' perceptions of health research and informed consent procedures. Six focus groups (three in each cultural group) involving 42 participants and two individual interviews were conducted. The focus groups began with a general question about health research. This was followed by three short role palys between the moderator and the assistant. The role plays involved a fictional health research study in which a patient is approached for recruitment, is read a consent form, and is asked to sign. The role plays stopped at the key moments at which time focus group participants were asked questions about their understanding and their perceptions. Focus group transcripts were coded in QSR NUDIST software using open coding and then compared across cultural groups. Six overriding themes emerged, two were common in both the portuguese and caribbean transcripts, one emphasized the importance of trust and mistrust, and the other highlighted the need and desire for more information about health research. However these themes were expressed somewhat differently in the two groups. In addition, there were four overriding themes that were specific to only one cultural group. In the portuguese groups, there was an overwhelming positive regard for the research process and an emphasis on verbal as opposed to written information. The caribbean participants qualified their participation in research studies and repeteadly raised images of invasive research.

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