Illnesses You Have to Fight to Get : Facts as Forces in Uncertain, Emergent Illnesses  

Oleh:

Dumit, Joseph

Jenis: Article from Journal - ilmiah internasional
Dalam koleksi: Social Science & Medicine (www.elsevier.com/locate/sosscimed) vol. 62 no. 3 (Feb. 2006), page 577-590.
Topik: illness; chronic illness; chronic fatique syndromw; multiple chemical sensitivity; uncertainty; social movements; united states; access to care

Ketersediaan

Perpustakaan Pusat (Semanggi) Nomor Panggil: SS53.1 Non-tandon: 1 (dapat dipinjam: 0) Tandon: tidak ada

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Isi artikel

Chronic fatigue syndrome and multiple chemicla sensitivity are two clusters of illnesses that are prevaded by medical, social and political uncertainty. This article examines how facts aer talked about and experienced in struggles over these emergent, contested illnesses in the US. Based principally on a large archive of internet newsgroup postings, and also on fieldwork and on published debates, it finds that : 1. suffers describe their experiences of being denied healthcare and legitimacy through bureaucratic categories of exclusion as dependent upon their lack of biological facts 2. institutions manage these exclusions rhetorically through exploiting the open endedness of science to deny efficacy to new facts 3. collective patient action responds by archiving the systematic nature of these exclusions and developing counter tactics. The result is the maintenance of these very expensive struggles for all involved.

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