How to Build an Active Patient? The Work of AIDS Associations in France  

Oleh:

Barbot, Janine

Jenis: Article from Journal - ilmiah internasional
Dalam koleksi: Social Science & Medicine (www.elsevier.com/locate/sosscimed) vol. 62 no. 3 (Feb. 2006), page 538-551.
Topik: MEDICINE; AIDS; evidence based medicine; doctor patient relations; knowledge production; france; AIDS associations

Ketersediaan

Perpustakaan Pusat (Semanggi) Nomor Panggil: SS53.1 Non-tandon: 1 (dapat dipinjam: 0) Tandon: tidak ada

Lihat Detail Induk

Isi artikel

What is an active patient ? is a question that arises in most medicine and illness related social science research. This article examines the normative work carried out by AIDS associations in france to define an active patient in healthcare and research. While the fight against AIDS is often presented as being homogenpus, we look at the diversity of opinion between different associations (Aides, act up paris, actions traitments and positifs). We find four different cases : the patient as manager of his illness, the empowerment of patients, the science wise patient and the experimenter. Systematic comparison of these cases shows that theses perceptions of the active patient, in terms of the same pathology, are based upon different ways of seeing : the nature of relationships between the different types of knowledge of the illness (scientific knowledge, clinical knowledge, experience of the illness) and the distribution of roles and powers among the various actors in the healthcare system (the government, pharmaceutical companies, the medical professions, the patients). This article highlights the historical dynamics which allow us to have a between understanding of these differences, especially the msjor disctinction between two generations of associations, which adopted different positions with regard to their public identity.

Opini Anda

Klik untuk menuliskan opini Anda tentang koleksi ini!

Kembali