Parents' Experiences of Sharing Neonatal Information and Decisions : Consent, Cost and Risk  

Oleh:

Alderson, Pricilla ; Hawthorne, Joanna ; Killen, Margaret

Jenis: Article from Journal - ilmiah internasional
Dalam koleksi: Social Science & Medicine (www.elsevier.com/locate/sosscimed) vol. 62 no. 6 (Mar. 2006), page 1319-1329.
Topik: NEONATAL INTENSIVE CARE; babies; intensive care ethics; neonatal decision making. infromed consent; england

Ketersediaan

Perpustakaan Pusat (Semanggi) Nomor Panggil: SS53.2 Non-tandon: 1 (dapat dipinjam: 0) Tandon: tidak ada

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Isi artikel

This paper is about the case of babies with confirmed or potential neurological problems in neonatal intensive care units. Drawing on recent ethnographic research, the paper considers parents' experiences of sharing information and decisions with neonatal staff, and approaches that support or restrict parents' involvement. There are growing medicolegal pressures on practitioners to inform parents and involve them in their babies care. Data are drawn from obeservations in four neonatal units in southern england, and interviews with the parents of 80 babies and with 40 senior staff. The paper compaers standards set by recent guidance, with parents views about their share in decision making, the first meetings with their babies, minor decision making, the different neonatal untis, being a helpless observer and missed opportunities. parents' standards for informed decisions are summarised, with their reported views about two way decision making, and their practical need to know. Whereas doctors emphasise distancing aspects of the consent process, parents tend to value drawing together aspects.

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