Introduction  

Oleh:

Parker, Michael

Jenis: Article from Books - E-Book
Dalam koleksi: Ethical Problems and Genetics Practice, page 1-13.
Topik: Ethical; Genetics; Medical
Fulltext: Introduction.pdf (167.24KB)

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I’ve got a young patient with a family history of Huntington’s Disease who wants to have a test to see whether she is going to be affected by the disease as she gets older. She is worried because she knows that her paternal grandmother has it. During counselling my patient disclosed that she is an identical twin. She says that her twin sister is not aware of the family history and says that she does not want her sister to know because she doesn’t think that she could cope with this knowledge, particularly because the disease is untreatable. When I told her that I was reluctant to do the test on her without discussing it with her sister – because the fact that they are identical twins means that the test would also be a test on her twin – she said that she didn’t want her sister to be involved. To reassure me, she promised that whatever the test result she would not disclose this. The other problem I have got is that in addition to being a test on her twin the test, if positive, would also be test on her father who, she says, also does not know that she has come in for testing. I’ve tried to encourage her to talk to her sister and father about the test but she says that she’s not able to do this. I feel that I have got a duty of care to my patient, but I’m also worried about her sister and father even though I have never met them.

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