Detail Consent 2.0: Genomic Research   Oleh:  [s.n] Jenis: Article from Bulletin/Magazine Dalam koleksi: The Economist (http://search.proquest.com/) vol. 403 no. 8782 (Apr. 2012), page 74. Topik: Informed Consent; Genomics; Research; Digital Signatures Ketersediaan Perpustakaan Pusat (Semanggi) Nomor Panggil: EE29.71 Non-tandon: 1 (dapat dipinjam: 0) Tandon: tidak ada     Lihat Detail Induk Isi artikel In an age where people promiscuously post personal data on the web and regularly click "I agree" to reams of legalese they have never read, news of yet another electronic consent form might seem like a big yawn. But for the future of genomics-related research the Portable Legal Consent, to be announced shortly by Sage Bio-networks, a non-profit research organization based in Seattle, is anything but mundane. Indeed, by reversing the normal way consent to use personal data is acquired from patients in clinical trials, it could spell a new relationship between scientists and the human subjects of their research, with potential benefits that extend well beyond genomics. So far, the Portable Legal Consent is valid only in America, although Sage Bio-networks is looking at ways of adapting it to fit the legal frameworks of China and the European Union. How quickly the idea will catch on remains to be seen. But if it does, other sorts of researchers who rely on gathering personal data--for example in sociology or in tracking energy use in homes--may find it attractive. And that would enable research of a sort that is now impossible, by opening up the field of quantifiable social science. Opini Anda Klik untuk menuliskan opini Anda tentang koleksi ini! Kembali

Copyright © 2006, 2007 Unika Atma Jaya, all rights reserved