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ArtikelGenomics, Health Care, and Society  
Oleh: Hudson, Kathy L.
Jenis: Article from Journal - ilmiah internasional
Dalam koleksi: The New England Journal of Medicine (keterangan: ada di Proquest) vol. 365 no. 11 (Sep. 2011), page 1033-1041.
Topik: GENETICS
Ketersediaan
  • Perpustakaan FK
    • Nomor Panggil: N08.K.2011.02
    • Non-tandon: 1 (dapat dipinjam: 0)
    • Tandon: tidak ada
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Isi artikelAlthough genetic and genomic research do not raise wholly new ethical issues in the context of general biomedical research, they cast these issues in a fresh light. First, research using collections of biologic specimens, genomic data, and information from medical records has amplified the long-standing yet unresolved issue about consent for future research that is unanticipated at the time of specimen collection. Second, the push for broad access to research data sets has raised privacy concerns. Third, as researchers seek to share data with colleagues, the issue of whether and how to share research results with study participants remains vexing, particularly in the absence of explicit prior consent from participants.
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