Situated/Being Situated: Client and Co-Worker Roles of Family Caregivers in Hospice Palliative Care  

Oleh:

Stajduhar, Kelli I. ; Nickel, Dawn D. ; Martin, Wanda L. ; Funk, Laura

Jenis: Article from Journal - ilmiah internasional
Dalam koleksi: Social Science & Medicine (www.elsevier.com/locate/sosscimed) vol. 67 no. 11 (Dec. 2008), page 1789-1797.
Topik: Palliative Care; End of Life; Family Caregiver; Health Care System; Clients; Co-workers; Canada

Ketersediaan

Perpustakaan Pusat (Semanggi) Nomor Panggil: SS53.24 Non-tandon: 1 (dapat dipinjam: 0) Tandon: tidak ada

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Isi artikel

Since the inception of the modern hospice movement, the patient and family caregiver (FCG) have been considered the unit of care; family members are identified as 'clients' within palliative care philosophy. Little research has focused on how FCGs define their roles wihin the hospice palliative care (HPC) system. The aim of this study was to describe how FCGs of dying cancer patients view their roles in relation to the HPC system. Secondary analysis of interviews with 36 bereaved FCGs in Western Canada, guided by interpretive descriptive methods, found that FCG s perceived themselves as having two roles: client and co-worker. FCGs situated themselves as clients, where they actively sought help from the health care system. FCGs at times also perceived they had been situated as clients by health care providers, and were more resistant to accepting help. In other comments FCGs situated themselves as co-workers, seeking out an active role within the HPC team, whereas in other instances, felt they were situated as co-workers by a health care system with limited financial and human resources. Findings suggest that greater emphasis be palced on helping family members identity suitable interventions depending on how they view their roles within the HPC system. How we define family members in relation to the HPC system may also require reconsideration to reflect a more current conceptualization of realities in end-of-life care.

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