Beginning Community Engangement at a Busy Biomedical Research Programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya  

Oleh:

Marsh, Vicki ; Kamuya, Dorcas ; Rowa, Yvonne ; Gikonyo, Caroline ; Molyneux, Sassy

Jenis: Article from Journal - ilmiah internasional
Dalam koleksi: Social Science & Medicine (www.elsevier.com/locate/sosscimed) vol. 67 no. 5 (Sep. 2008), page 721-733.
Topik: Kenya; Community Engangement; Bioethics; Ethical Research

Ketersediaan

Perpustakaan Pusat (Semanggi) Nomor Panggil: SS53.22 Non-tandon: 1 (dapat dipinjam: 0) Tandon: tidak ada

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Isi artikel

There is wide acknowledgment of the need for community engangement in biomedical research, particularly in international settings. Recent debates have described theoretical approaches to identifying situations where this is most critical and potential mechanisms to achieve it. However, there is relatively little published experience of community engangement in practice. A major component of the Kenya Medical Research Insitute (KEMRI) Wellcome Trust Research Programme is centered on Kilifi District General Hospital and surrounding community of 240,000 local residents. Documented community perceptions of the research centre are generally positive, but many indicate a low understanding of research and therapeutic misconceptions of its activities. As in other settings, these misunderstandings have contributed to concerns and rumours, and potentially undermine ethical aspects of research and local trust in the institution. Through a series of consultative activities, a community engangement strategy has been developed in Kilifi to strengthen mutual understanding between community members and the Centre. One important component is the establishment of a prepresentative local resident network in different geographic locations commonly involved in research, to supplement existing communication channels. Early implementation of the strategy has provided new and diverse opportunities for dialogue, interaction and partnership building. Through the complex social interactions inherent in the community engangement strategy, the centre aims to build context specific ethical relations with local residents and to strengthen understanding of how ethical principles can be applied in practice. Evaluations over time will assess the effectiveness and sustainability of these strategies, provide generalisable information for similar research settings, and contribute to debates on the universality of ethical principles for research. This paper aims to summarise the rationale for community engangement in research, drawing on published literature and local findings, to outline the process of community engengement in Kilifi and to describe issues emerging from its development and early implementation.

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