A New Moral Agent: The Patient Advocate  

Oleh:

Iltis, Ana Smith

Jenis: Article from Journal - ilmiah internasional
Dalam koleksi: The Journal of Medicine and Philosophy vol. 27 no. 6 (Dec. 2002), page 699-702.
Topik: New Moral; Agent; Patient Advocate; Science; Salvation
Fulltext: MM80V27N6P699.pdf (31.75KB)

Ketersediaan

Perpustakaan Pusat (Semanggi) Nomor Panggil: MM80.12 Non-tandon: 1 (dapat dipinjam: 0) Tandon: tidak ada

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Rebecca Dresser offers an insightful and illuminating analysis of a new phenomenon in biomedical research, namely the role, power, and influence of patient advocates. Patient advocates began primarily as representatives of the under-dog in medical research, those with debilitating conditions or diseases in need of promising new treatments or therapies who were vulnerable to being taken advantage of by unrelenting researchers. Research subjects’ rights had to be protected as they had been so grotesquely violated in the past (e.g., the Tuskegee syphilis trials), and advocates were available to ensure that subjects understood their rights and researchers understood and fulfilled their obligations to respect those rights. Advocates now do much more than protect the basic rights of research subjects. They have become political players with significant power to influence research agendas by raising money for medical research and influencing politicians and government agencies with regard to the allocation of research dollars. Research subjects are no longer passive; they have become, as Dresser is careful to note, research participants. In large part, this change in status seems related to the increasing role of research advocates.

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